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SICKLE CELL OUTREACH INITIATIVE

  

 Future Builders, Inc. is spreading the word about Sickle Cell Disease

Future Builders  provides residents of Pulaski and Jefferson counties with accurate information about sickle cell disease and sickle cell trait that will assist them in making positive life choices about their health and ensure a better quality of life.  

It is our desire to complement the recommendations of The Arkansas Legislative Task Force on Sickle Cell Disease by providing sickle cell disease education and awareness to residents in two counties with the highest sickle cell prevalence rate. Those counties are Pulaski and Jefferson. The program title is THE ARKANSAS SICKLE CELL NETWORK because it uses a diverse group of partnerships to achieve its primary goal which is to BROADEN THE AWARENESS OF SICKLE CELL DISEASE AND SICKLE CELL TRAIT TO RESIDENTS AND MEDICAL PERSONNEL OF PULASKI AND JEFFERSON COUNTIES IN ARKANSAS.

Based upon three of the recommendations from the Arkansas Legislative Task Force on Sickle Cell Disease, the Arkansas Sickle Cell Network employs the following objectives (1) conduct a general awareness campaign using radio, print media and social networking activities via the internet; (2) target physicians and medical personnel by conducting a webinar and conference/symposium to address SCD education, awareness and care and; (3) use school medical professionals to reach students in the public school systems.  

About Sickle Cell Disease

 

Sickle cell anemia (uh-NEE-me-uh) is the most common form of sickle cell disease (SCD).

SCD is a serious disorder in which the body makes sickle-shaped red blood cells. "Sickle-shaped" means that the red blood cells are shaped like a crescent.

Sickle cells are stiff and sticky. They tend to block blood flow in the blood vessels of the limbs and organs. Blocked blood flow can cause pain, serious infections, and organ damage.

Sickle cell anemia is an inherited, lifelong disease. People who have the disease are born with it. They inherit two genes for sickle hemoglobin-one from each parent.

Sickle cell trait is different than sickle cell anemia. People who have sickle cell trait don't have the disease, but they have one of the genes that cause it. Like people who have sickle cell anemia, people who have sickle cell trait can pass the sickle hemoglobin gene on to their children

Sickle cell anemia has no widely available cure. However, treatments can help with the symptoms and complications of the disease.

National Statistics

Nationally, it is estimated that 70,000 - 100,000 Americans are living with sickle cell disease, according to the National Institute of Health (NIH, 2011).

  • 1 in 500 African Americans are living with sickle cell disease.
  • 1 in 36,000 Hispanic Americans are born with sickle cell disease.
  • Sickle cell trait, the healthy carrier state for sickle cell disease, occurs in approximately 1 in 12 African Americans.
  • It is estimated that over two million Americans are sickle cell trait carriers.
  • The disease occurs in about 1 out of every 500 African Americans births.
  • The disease occurs in about 1 out of every 36,000 Hispanic Americans births

 

Veiw this video and see the faces of Sickle Cell Disease:

 

 

Join the Arkansas Sickle Cell advocates every Monday at 3:00  pm.

here  on

 

 

 The Future Builders Sicklle Cell Disease Outreach Initiative is funded by a grant from the Arkansas Minority Health Commission.